I found a description of Fanconi Anemia on Wikipedia: "FA is the result of a genetic defect in a cluster of proteins responsible for DNA repair. As a result, 20% or more of FA patients develop cancer, most often acute myelogenous leukemia, and 90% develop bone marrow failure (the inability to produce blood cells) by age 40. About 60-75% of FA patients have congenital defects, commonly short stature, abnormalities of the skin, arms, head, eyes, kidneys, and ears, and developmental disabilities. Median age of death was 30 years in 2000.
Treatment with androgens and hematopoietic (blood cell) growth factors can help bone marrow failure temporarily, but the long-term treatment is bone marrow transplant if a donor is available."
On Saturday night, many of Dave's college buddies gathered for a fundraiser to help research for the disease, and in turn helping their friend's sweet children, 9 year old Evan, and 3 month old Rebecca. It was such a amazing night in that $51,000 was raised, and we were able spend time with good friends that we don't get to see enough.
Here we are snugly fit into a van on the way over to the fundraiser...love that the three big guys are stuffed into the back seat! ;)
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Love you, friends!
1 comment:
Awww, I am glad so much money was raised for your friends children! Also, you got to have a fun night out on top of it!!
You look AWESOME by the way :)
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